Stay Safe & Self Advocate

Stay Safe & Self-Advocate

Coming soon…
Autism Society of Nebraska is launching an educational “Stay Safe and Self Advocate” campaign to help people with autism maximize their ability to help people on the autism spectrum maximize their ability to identify, and advocate for their own health during the COVID-19 Pandemic and understand the changes to health care visits and routines related to the pandemic.
People on the spectrum already “experience greater unmet health care needs, greater emergency room use, less use of recommended preventive care services, lower satisfaction with health care, lower health care self-efficacy, and a greater number of barriers to health care than nonautistic [neurotypical] adults” Raymaker, 2012). With the addition of COVID-19 changes to healthcare services, our community is at risk for additional barriers, and lack of services.
This educational campaign will explicitly teach, model, giving opportunities to role-play and receive feedback prior to healthcare visits can help ensure that individuals on the spectrum are prepared to how to answer wellness check questions and understand how to practice good COVID-19 safety measures.
Stay tuned for updates in late November 2020!
Stay Safe & Self Advocate

Inspiration

In May of 2020, an ASN’s board member’s family member (who is a disabled individual) was recently on a bus of developmentally disabled individuals as part of a workforce development program. The direct support professional (DSP) working with these individuals asked each person a question before boarding the bus: “Does anyone feel sick or have a cough today?” Each person answered in the negative, but when temperatures were taken, one man was measured to have a very high temperature, and indeed later tested positive for COVID-19. When questioned why he did not answer the DSP’s question in the affirmative, it was determined that he did not equate fever symptoms with the concept of “feeling sick.”
(Individuals did not ride with the bus with the infected person. The individual who tested positive received medical care promptly. Proper protocol was followed regarding quarantining of potentially exposed individuals.)
Many of us with experience with individuals on the autism spectrum were not surprised to learn of this series of events. Being able to translate bodily senses into feeling words about health is a documented concern among people on the autism spectrum.
While communicative barriers exist, steps can be taken to bridge gaps between autistic and non-autistic people in this important time. Steps can be taken by both autistic and neurotypical people to learn more. ASN seeks to provide expert advice to both audiences.
While some videos have been produced for non-autistic audiences regarding autism, coronavirus, and health-related self-advocacy, woefully few videos have been produced that directly address people on the autism spectrum. ASN staff has not aware of any publicly available videos that teach health-related self-advocacy specifically to individuals on the autism spectrum beyond the basic self-protection methods.
As our state (and our hemisphere) begin the cold and flu season of Fall, Winter, and Early Spring, ASN seeks to create videos that explain how to deal with aspects of health that transcend the prevention methods with which we have all become acquainted.

 


This project is supported by funding from the Coronavirus Aid, Relief, and Economic Security Act (CARES Act) from the U.S. Department of Treasury and the Nebraska Department of Health and Human Services, CFDA Number 21.019.

 

© 2020, Autism Society of Nebraska