Category Archives: Advocacy

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CDC Announces Autism Prevalence Rates Remain the Same

2016 CDC Incidence Report

Today, the Centers for Disease Control and Prevention (CDC) announced that the incidence of autism among eight year olds in the United States remains 1 out of 68 children. This CDC report occurs every two years.

We have three key messages about today’s report:

  • Each person with autism deserves a life full of dignity, value and respect. Their lives should allow them to pursue options that maximize their quality of life and value to society.
  • It is important to realize these statistics represent real people who contribute to society.
  • It is important to understand autism through research, but just as important to be there for the over 3 million Americans who live with autism today.

Additional information on this announcement can be found at: http://www.autism­society.org/in­the­news/autism­prevalence­rates/

For more information on the Study methodology go to: http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6302a1.htm?s_cid=ss6302a1_w

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National Student Speech Language Hearing Association

http://www.kmtv.com/the-morning-blend/uno-national-student-speech-language-hearing-association-33016

The students of UNO’s National Student Speech Language Hearing Association are committed to helping families affected by autism.  For the second year, they are holding a fundraiser to benefit the Autism Society of Nebraska.  UNO’s Got Talent is coming up April 15th with talent performers, raffle prizes, food and more.

Donate to UNO NSSLHA’s fundraiser here

 

Court-Gavel

Judge: State must cover medically necessary autism services

Link to the Journal Star Story

Nebraska must pay for autism services — and any other treatments deemed medically necessary — for the state’s Medicaid-eligible children, a Lancaster County judge has ruled.

In a 19-page order filed Tuesday, District Judge John Colborn found a state Department of Health and Human Services policy that excluded Medicaid coverage of Applied Behavior Analysis services, often prescribed to treat development disabilities like autism, violated federal law.

The judge also agreed to certify the case as a class action, meaning his order applies to all children in similar situations in Nebraska. And he also ordered the state to stop enforcing its unlawful policy.

A day later, the Nebraska Appleseed Center, which filed the suit on behalf of two unnamed boys now 6 and 7, hailed the decision as a big win.

“This ruling is an important victory for Nebraska families with children who have been wrongfully denied access to essential mental and behavioral health treatments that were recommended by their doctors,” said Appleseed legal director Sarah Helvey. “The court’s ruling will allow more children to get the care they need to have the best possible future.”

Asked how HHS would move forward as a result of the ruling, spokeswoman Kathie Osterman said: “I can tell you that we’re reviewing the decision and working with the Attorney General’s Office to determine our next steps.”

The state has 30 days to decide if it wants to appeal.

Helvey said Nebraska Appleseed is looking forward to working with the department “to begin covering these vital treatments immediately for the hundreds of Nebraska children who need them.”

She believes Medicaid-eligible children should be able to get the treatments immediately.

It’s been a long time coming, Helvey said.

In 2012, working with the National Health Law Program and Husch Blackwell LLP, the Nebraska Appleseed Center filed the lawsuit on behalf of the two Nebraska boys against then-HHS director Kerry Winterer and Vivianne Chaumont, then director of the Division of Medicaid and Long-Term Care.

At the time, one was a 4-year-old diagnosed with disruptive behavior disorder, autism spectrum disorder and attention deficit hyperactivity disorder, among other issues.

The other was a 3-year-old diagnosed with Pica, an eating disorder, and stereotypic movement disorder, characteristic of repetitive, purposeless movements that can cause bodily harm.

Doctors for both boys, who are from separate families and both eligible for Medicaid, had recommended treatment that included Applied Behavior Analysis services.

But Magellan Health Services, a contractor that reviews requests for mental and behavioral health treatments for Medicaid-eligible children, denied the treatments based on HHS policy.

The policy categorically excludes Medicaid coverage for Applied Behavior Analysis services and behavior modification management.

Neither of the boys got the treatment that Nebraska Appleseed staff attorney Robert McEwen said has been shown to prevent the further progression of self-injury for developmentally disabled kids and, if provided at an early enough age, can put them back on the developmental track where they started.

“It’s been a long haul for them,” McEwen said of the boys and their families, with whom he talked on Tuesday. “It was a really happy conversation.”

He said the judge was clear about coverage of services for children under Medicaid: If a service can be covered and is allowed under Medicaid, it must be covered by the state when it’s deemed medically necessary.

Moving forward, McEwen said, the decision not only will help ensure Medicaid-eligible kids in Nebraska get Applied Behavior Analysis services but also other treatments deemed medically necessary.

He called it a big step forward for Nebraska children.

 

KMTV Action 3 Omaha logo

KMTV interviews ASN: Republican debate’s spotlight on autism helps raise awareness

Republican debate’s spotlight on autism helps raise awareness

Watch HERE

By Miranda Christian.

OMAHA, Neb. (KMTV) – Republican candidate Donald Trump highlighted the autism and vaccine issue at the Republican debate Wednesday night. Trump suggested that vaccines can cause autism.

Coincidentally, the next day was “The Big Give for Autism” fundraiser, held by the Autism Society of America.

The Nebraska chapter’s vice president Wendy Hamilton said that when the topic of autism appears in the national spotlight, they try to look at the positive side.

“Any publicity is good publicity. I would hope that with the conversation being made so public, people take an opportunity to say, ‘Wait a second, I think I want to look into that a little bit more,’” said Hamilton.

The vaccine debate has been around for years and Trump is bringing it back to the forefront.

“I am not here to tell people what to believe or not to believe, except educate yourself,” said Hamilton

Autism being discussed during the debate could not have come at a better time for ASA. A national all-day, online fundraiser would take place Thursday. The money raised will help the 21,000 Nebraskans who are diagnosed with autism.

“I think anytime it is brought up in conversation is good, the timing couldn’t have been more perfect for us giving we are doing a major fundraiser, so for that, we say thanks,” said Hamilton.

Nebraska_State_Legislature

LB 591 Nebraska ABLE Act Legislation Call to Action

LB 591 – Create the achieve a better life experience program and provide for adjustments to taxable income.

Public Hearing Wednesday March 11, 2015 Room 1524 2:00 PM

Join the Autism Society of Nebraska along with other organizations to encourage senators to move LB591 out of Committee and support this new bill that gives Nebraska Families a tax-free savings option for individuals with special needs.

Email your senator and urge support for this bill.  The senators listed below are committee members that need to hear your voice!

Email Template Click here

Please submit your letter of support to the emails below no later than Tuesday March 10th, 2015 at noon, thanks!

Senator Lydia Brasch
lbrasch@leg.ne.gov

Senator Davis Albert
adavis@leg.ne.gov

Senator Mike Gloor
mgloor@leg.ne.gov

Senator Burke Harr
harr@leg.ne.gov

Senator Jim Scheer
jscheer@leg.ne.gov

Senator Paul Schumacher
pschumacher@leg.ne.gov

Senator Jim Smith
jsmith@leg.ne.gov

Senator Kate Sullivan
ksullivan@leg.ne.gov

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LB 163 for a Statewide Public Safety Platform

Hello,

On Thursday, 1/22, I had the opportunity to testify in front of the Government Committee in Lincoln regarding potential legislation, LB 163.  LB 163 is important for us because it would create, and provide funding for, a statewide Public Safety platform that would help all families.  At the heart of it, it would implement a system known as Smart911 which would allow families (for free) to create “Safety Profiles” which can include things like photos and physical descriptions, health and medical information, rescue needs and much more.  ABC News and Good morning America recently called it a “Personal Safety Game Changer” in this story: http://youtu.be/-pgpJzK4d9U

You can learn more about LB 163 here: http://www.nebraskalegislature.gov/bills/view_bill.php?DocumentID=24901

Here is where we need your help…  The bill’s first hurdle is to get out of committee so we need your help.  If you are a constituent of one of the following Senators, we need you to email them and let them know you are in support of LB 163.

Committee Chairperson:  John Murante  District 49  Sarpy County  jmurante@leg.ne.gov

Vice Chair: Tommy Garrett   District 3       Sarpy County          tgarrett@leg.ne.gov

Dave Bloomfield                   District 17     Wayne County        dbloomfield@leg.ne.gov

Joni Craighead                     District 6       Douglas County      jcraighead@leg.ne.gov

Mike Groene                         District 42     Lincoln County       mgroene@leg.ne.gov

Matt Hansen                         District 26     Lancaster County   mhansen@leg.ne.gov

Tyson Larson                        District 40     Holt County             tlarson@leg.ne.gov

Beau McCoy                         District 39     Douglas County      bmccoy@leg.ne.gov

After the bill moves out of committee we will direct the efforts to a larger audience across the entire state.

I’ve provided a sample email below.

Senator _________________,

My name is ______ _______ from ________.  I am reaching out to you to voice my strong support for LB163 currently being reviewed by Government, Military and Veterans Affair Committee.

LB 163 can save lives by enhancing location information and delivering additional details about the caller, their family, and the location that will help Public Safety respond faster and more effectively. As part of a nationwide, secure Public Safety network, LB 163 would be able to assist our community members not only while they are in Nebraska, but nationwide.

LB 163 would make a difference by allowing 9-1-1 and first responders to instantly have photos and physical descriptions for missing persons, dramatically reducing response times and increasing successful rescues.  LB 163 would also create a much needed next of kin registry that could be used to quickly identify and locate family members.

Thank you very much for your support of LB 163 and the tremendous, positive impact it can have here in Nebraska.

Thank you for your time,

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